Family Caregiver Registry

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Purpose: We are interested in helping caregivers connect with their loved ones who use social media to tell their story of advanced serious illness. Our research relies on volunteers like you who are willing to share their experiences.

Background: Our research has found that one positive way that families engage with each other is by reading their loved ones' illness story on social media.

Goal: For family caregivers to share their contact information to help us build a registry of volunteers who wish to share their experiences through participating in future research.

You may also be interested in other research opportunities, including:

  • Family caregivers of adults who are in Intensive care units (ICU) or Long Term Acute Care Hospitals (LTACH) or have recently experienced an ICU/LTACH stay
  • Adolescents as family caregivers of a parent who is in hospice
  • Spirituality and spiritual uncertainty among family caregivers

Sign Up for Caregiver Registry


Thank you for your interest in our registry.
 
By entering your information, you are giving us permission to contact you about the opportunity to participate in our research. You are not obligated to participate in any research and can remove your name from the registry at any time. Your information will not be sold to third parties.
 

Sign Up for Caregiver Registry

 

 

Frequently Asked Questions

What is a Caregiver Registry?

This registry is a way to connect members of our research team with volunteers who are interested in participating in our research studies. 

How does this work?

Are there any risks?

Kent State University College of Nursing makes every effort to keep your personal information private, secure and confidential. Your information will be stored in a secure, encrypted database that is trusted by institutions from all over the world to collect and store private information. As with every other website that collects information, there is potential risk of loss of confidentiality of your information. 

What happens once I register?

After you register, you will receive a welcome email confirming that you have successfully enrolled in the registry. You will receive quarterly updates about our current research. A researcher will contact you when a study opportunity arises for which you may be interested.

It is always your choice to decide which studies (if any) interest you. You are not required to participate in any of our studies.

How does Kent State University College of Nursing protect my information?

Kent State University College of Nursing takes your privacy very seriously. We use a secure server that will store your contact information. Our research team are the only people who will have access to your information. Your information will not be sold to third parties.

Who are your researchers?

Our Advanced Serious Illness (ASI) research team and their areas of research are:

  • Dana Hansen Ph.D., APCHN, APRN – Family caregivers and social media, dhansen1@kent.edu
  • Amy Petrinec Ph.D., RN – Family caregivers and the ICU, apetrine@kent.edu
  • Denice Sheehan Ph.D., RN, FPCN – Adolescent caregivers, dsheeha1@kent.edu
  • Pamela Stephenson Ph.D., RN – Spirituality and spiritual uncertainty and the family caregiver, pstephe2@kent.edu
Will I start getting a lot of calls if I join the registry?

No. You will receive quarterly updates about our current research. A researcher will contact you when a study opportunity arises for which you may be interested. 

If you wish to remove your name from the registry you may do so by contacting Dr. Dana Hansen (dhansen1@kent.edu).

What if I change my mind about being a part of the registry?

You are free to change your mind about joining our registry at any time. Contact Dr. Dana Hansen at dhansen1@kent.edu to remove your information from our list.

What can I do if I have more questions?

If you have additional questions, please email Dr. Dana Hansen at dhansen1@kent.edu.